In times of need
You’ve come to exceed
All my expectations
When I feel lonely
You prove that I only
Have to look your way
When anger consumes me
You show me how to be
Forgiving in my ways
When love is there
We’re showing we care
That is how life should be
This was a poem written at a time when my husband and I were getting to know each other. As I looked back upon our time I was able to see how he impressed me and surprised me with the way he handled my seizures. He helped me to discover that in times when I feel alone, I just had to look to him for a friend. In times of confusion, when my seizures overwhelmed me, I lashed out at others with anger without even realizing it. Watching how he handled those times with love taught me to be more forgiving. Seeing all the love that my partner gave me inspired me to live my life with love and care. Together we decided that love and care was what we wanted for our lives together.
My thoughts lie with you
Even when we’re apart
Thoughts of getting back to you
Are filling up my heart
We will never truly be apart
For our hearts are still together
We may not be side by side
But together we are forever
I look forward to going home to you
I love to know that you are waiting
I’m looking forward to hugs and kisses
Our reunion I’m anticipating
This was a poem that I wrote when my partner and I were separated due to schooling. My thoughts were on him even though I hadn’t seen him in days. As vacations approached the idea of seeing him was filling my mind and helping me to find more happiness. As I started to think of him more I realized that we were never truly apart because our hearts were together. We were not physically side by side but we were still together.
I looked forward to going home to him and I loved knowing that he waited for me. I looked forward to having more hugs and kisses with him. A reunion where we could be physically side by side was a true gift for my heart.
To offer belief in me
Shows that they care
However the strength of their belief
Is quite a scare
Acceptance of their care
Is a responsibility
For a person who can and cannot
A person with changing abilities
Constantly day to day
Expecting others to know
Can never be the way
Acceptance has to come from the self
Though wished for from friends and family
It’s important to maintain my given beliefs
I need to love and care for the person that is me
This poem was a small reflection on how I was feeling about people’s belief in me. There are times when my Epileptic Seizures overwhelm me and I wonder why it is not an obvious bother to other people. As others continue to show faith in me I get scared that I will not be able to live up to their beliefs. The idea of accepting their faith feels like an acceptance to work harder alone at a time when I am feeling like I need help.
I have to remind myself that changes for me will happen constantly and as obvious as it may feel to me, others do not see it or know about it as easily. Acceptance of my person must always come first from my person. As much as my seizures make me feel like I will need care from another person, it is my responsibility to know of my needs and care for my person first. Without being told of my needs I cannot expect another person to know. Changing abilities are challenges given to a person to help them grow and discover their actual person. Belief from others is proof of the love that the world does have for us, even if it makes us feel alone in our journey.
Is that an inability?
No. It is a Challenge
To live your life differently.
It can be a scare,
To people that are unaware.
Give yourself knowledge,
Disability becomes a dare
Be yourself the best,
Acceptance will put fears to rest.
Conquer your personal life’s quest.
This was a poem that I wrote to express how I felt about having Epileptic Seizures in my life. I had spoken to others with a similar situation, they chose to be scared and dependent but I did not want to join them. I looked at my slight disability as a challenge for me to live my life differently.
As I started to think of some of my differences I was reminded of how my situation is a scare and confusion to people who are uninformed. When one is given the knowledge, I find that they are more prepared to face the challenge. This is why I try to inform strangers of my situation from the start. I wish for the people around me to welcome their experience and learn in an open, knowledgeable environment.
When open and honest everyone feels more open to learn, accept and lower their fears.
A new adventure
For new people I meet
To see a seizure
When I have a seat
They look in question
And they often ask why
Looks of confusion
As they see me try
It happens to inform
Give new lessons to learn
It helps thoughts to be reformed
Have purpose and return
This was a poem that was inspired by the caring and loving people I meet in this world. I recalled looks of question and confusion that used to worry me but, through, experience I have been able to see how helpful it has been to the world for me to live with my medical condition openly.
I have been able to hear from others how informative I have been. Even other people, with the same condition in their life, have told me how they have learned. Through being open I have been able to learn that when a person is not informed, I am a scare to them. With the proper information those same people have been able to erase their fears and become more courageous for discovering. Everybody can fear the unknown but, with knowledge, everybody can feel secure and open to learn.