To offer belief in me
Shows that they care
However the strength of their belief
Is quite a scare
Acceptance of their care
Is a responsibility
For a person who can and cannot
A person with changing abilities
Constantly day to day
Expecting others to know
Can never be the way
Acceptance has to come from the self
Though wished for from friends and family
It’s important to maintain my given beliefs
I need to love and care for the person that is me
This poem was a small reflection on how I was feeling about people’s belief in me. There are times when my Epileptic Seizures overwhelm me and I wonder why it is not an obvious bother to other people. As others continue to show faith in me I get scared that I will not be able to live up to their beliefs. The idea of accepting their faith feels like an acceptance to work harder alone at a time when I am feeling like I need help.
I have to remind myself that changes for me will happen constantly and as obvious as it may feel to me, others do not see it or know about it as easily. Acceptance of my person must always come first from my person. As much as my seizures make me feel like I will need care from another person, it is my responsibility to know of my needs and care for my person first. Without being told of my needs I cannot expect another person to know. Changing abilities are challenges given to a person to help them grow and discover their actual person. Belief from others is proof of the love that the world does have for us, even if it makes us feel alone in our journey.
Is that an inability?
No. It is a Challenge
To live your life differently.
It can be a scare,
To people that are unaware.
Give yourself knowledge,
Disability becomes a dare
Be yourself the best,
Acceptance will put fears to rest.
Conquer your personal life’s quest.
This was a poem that I wrote to express how I felt about having Epileptic Seizures in my life. I had spoken to others with a similar situation, they chose to be scared and dependent but I did not want to join them. I looked at my slight disability as a challenge for me to live my life differently.
As I started to think of some of my differences I was reminded of how my situation is a scare and confusion to people who are uninformed. When one is given the knowledge, I find that they are more prepared to face the challenge. This is why I try to inform strangers of my situation from the start. I wish for the people around me to welcome their experience and learn in an open, knowledgeable environment.
When open and honest everyone feels more open to learn, accept and lower their fears.
A new adventure
For new people I meet
To see a seizure
When I have a seat
They look in question
And they often ask why
Looks of confusion
As they see me try
It happens to inform
Give new lessons to learn
It helps thoughts to be reformed
Have purpose and return
This was a poem that was inspired by the caring and loving people I meet in this world. I recalled looks of question and confusion that used to worry me but, through, experience I have been able to see how helpful it has been to the world for me to live with my medical condition openly.
I have been able to hear from others how informative I have been. Even other people, with the same condition in their life, have told me how they have learned. Through being open I have been able to learn that when a person is not informed, I am a scare to them. With the proper information those same people have been able to erase their fears and become more courageous for discovering. Everybody can fear the unknown but, with knowledge, everybody can feel secure and open to learn.
Communication can be a gift
To inform, educate and even prevent
Reactions can be a big surprise
Often causing unwanted worries to relent
It is good to share your person
To be open and honest
Openness of your character
A key to put worries to rest
We are all here for a reason
Even if it is mysterious
Enjoy the life you are given
No need to only be serious
This poem was written at a time when I was looking back on my experiences of telling others of my seizures. It has been my experience to inform others and never been met with the fears I had been warned of. When I tell others I am often met with a comfort and a welcome to friendship. When I know that my seizure will not be a scary shock for the other I am calmed, often causing me to not have a seizure. Even in situations when my body warns me of their visit, educating another helps me to chase the seizures away.
When others are educated, I find that they are comfortable when it occurs. I have been told that they are grateful that I want to prevent leaving them in question. My openness makes others feel wanted and included. They say that even though we are strangers a welcome from an unknown person makes them feel loved and wanted. People also share with me that my openness lets them know that my seizures are not to be feared. My personal comfort with my seizures helps others find a comfort to let them take their course. Communication has always been a great gift to me and the people around me.